One Hundred And Twenty Days Now Without My Medication

One Hundred and twenty days now without my medication. These past months have been absolutely draining. Fighting with neurology and his incompetent staff. Fighting with the pharmacy about who in the hell knows what! Now, March 26, 2024. I finally got my pills but can not take them until my first dose observation appointment.

Finally found a clinic

So after weeks of no call back from neros office or pharmacy. I keep reaching out with the endless calls that never get answered. Nero says they found a clinic that can do the first dose observation. That the person who schedules is out, and she would call me the following monday with an update.

Insurance issues

Monday goes by with no call, that Friday I call for an update for yet again no response. She called the following Monday to tell me that they are all ready to schedule the first dose observation appointment. But there something going on with my insurance and them putting the wrong code “yet again.” So there now waiting on the insurance to approve it once they do I can scedule the appointment.

Wrong code yet again

So weeks went by when I finally got a referral in the mail for cardiovascular. I called to schedule when they told me that they were missing a dam code on the referral! They can’t scedule unless they fix it and include it on a new referral. UGGGG!!! So I call primary and tell them about the code that they have to include.

May 29th

The following week, I called to schedule, and they said OK, May 29th,”Oh my lord, kill me now!” Two freakin months away, are you kidding me! They said it’s for a consultation. I said, “This isn’t for my first dose observation?” They say,”No, you have to get a consult first!” First off, I don’t need a consult with cardio! Second off, I don’t need a consult at all. I just need to be observed to take this dam pill and be on my way!

Hopeless

So I hung up and honestly just felt completely hopeless. Knowing that by the time I get to that appointment, I would be off my meds for over 5 months. And that appointment was a dam consult! So today 3/26/24 I called nero to update them since they could care less. “They actually answered.” Inform them of the appointment that is in May, and that is a consult. She says “no I’m going to call them right now! You don’t need to be seen for a consult! And it shouldn’t be that far out! All call you right back”

Tomorrow

She calls me a few hours later and asks me if I can go into the clinic tomorrow? So finally, I have my first dose observation appointment, and it’s tomorrow! She said it was only an hour the first time I started this medication it was 6 hours. So tomorrow is the day!!! We shall see.

Current state:

• Vertigo
• Blurred Vision
• Loss of Vision
• Tremors in arms and legs
• Extream Fatigue
• Daily Migraines
• Loss of Balance
• Weakness
• Numbness
• Depression at its Peak
• Mind fog
• Insomnia
• Spasticity issues
• Itchiness all over
• PAIN PAIN PAIN

I’m in a complex and full-on relapse! MS sucks ass!

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