They ask what’s my problem
And I’m reminded of what an invisible illness this is
They can’t see my pain
My extreme exhaustion
They can’t see how badly I struggle every day
And maybe a little more today
They don’t see how hard I’m fighting
They just see an able body that isn’t doing more
They don’t see how badly I want to give up and just give in to this illness that fights me with all it has
How badly I want to tap out and let it consume me
They just like keeping tally, throwing all my failings in my face
They don’t add there’s, though
Just mine
They ask why I’m like this
If you could only see the damage that’s going on in my body
It takes everything in me not to lose it
Because it’s so invisible
I’m so invisible
In a world we’re, I so desperately need to be seen
✍️3/21/24
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Way to go, Lynn! This is a wonderful poem about what it is like to have a silent illness like MS. It really says it all! Friday at last! Hope that your weekend is full of rest, dear friend. In our place there will be all the wonders of an early spring. I made chocolate chip cookies for us to share. Love you!
Thank you, friend. I was in a lot of pain Thursday, so I didn’t go in Friday. I’m also off Monday, so much recuperating. How are you? Tell me everything. I feel like I haven’t been keeping up with you as much as I want to. You are always in my thoughts, friend. I love chocolate chip cookies, yummy. we will catch up shove our face and just let everything out.
Yes, an afternoon with you in our place would be just the thing! Lots of talk, and laughter and chocolate chip cookies. I sure am glad that I was not a nurse for a living. Taking care of my husband for the last few weeks has worn me to a frazzle. I think that I have compassion burnout. Haha. We are so behind around here. We don’t even have our Christmas tree down! i don’t really mind, though. The bright colorful lights cheer me up. I am working on crocheting a multicolored shawl for the women’s shelter. I think that a woman in distress would feel the love I am putting into it. A warm hug from me to her. I try to send you good things while you are working at Amazon during the week. I know how hard it is for you. One good thing about my husband’s recovery. He has wanted to sleep in late every day. Such bliss! Sometimes until noon!! Does wonders for fatigue and depression on my part. 14 hours of sleep! Makes for a happy girl! You are always in my thoughts, my friend. See you in our place!
Hahaha I got that at the caregiver job took a lot out of me being so nice and caring lol. Christmas tree haha wow yes you are. Well at least you got to keep the lights up. I no they would I would. I love how artistic you are friend your going to have to make me something one day. I love that! Aww thank you. Hahaha right let’s just sleep. I feel the same that I need at least 10 hours to be OK I’m lucky to get 6 threwout the week. So on the weekend I’m dead lol. See you in our place dear friend
I did train in another role a few weeks ago did it Thursday. A lot easier on my body except picking up boxes from the floor and putting on conveyor. At least 100 that day have bruses all over my legs from lifting with my legs. Now that I think about it I was actually in a lot of pain that night hahaha completely dead. Told me husband and he told me not to go to work Friday when I got up lol. So I guess will see